June is National Scleroderma Month

Photo Credit in References

June is National Scleroderma month. Sclero-what? is unfortunately a normal response when this disease is spoken about.

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This is why the Scleroderma Foundation is working diligently for awareness of this disease. So, what exactly is scleroderma:

“Sclero” means “hard” and “derma” means “skin”. But hardening skin is just one of many symptoms scleroderma sufferers experience. Stiff joints, digestive issues, lung scarring, kidney failure—all can result. And sometimes be fatal. Scleroderma is an autoimmune disease with no known cause and no cure. Research is vital, but because so few people are aware of the disease, our researchers don’t always get the resources they need. Learn more about scleroderma. Help us get the word out”-Scleroderma Foundation[1].

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The mission of the Scleroderma Foundation is to “spread awareness and help educate the public about this devastating disease.”

Scleroderma Aware facts on scleroderma:

· A chronic autoimmune disease where the body’s immune system attacks its own tissue

· Affects about 100,000 people in the United States and Canada

o 80% of patients are women

· There are two types of scleroderma: localized and systemic

o Localized: Affects the skin on the face, hands and feet

o Systemic: Affects the blood vessels and internal organs

· Most patients diagnosed between the ages of 30-50

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Unlike many other diseases, there are not a ton of resources for people with scleroderma. Yet, there are a few working diligently to help those with scleroderma such as:

· Scleroderma Foundations (www.scleroderma.org)

· Scleroderma Aware(http://sclerodermaaware.org)

· The Scleroderma Research Foundation (http://www.srfcure.org/)


Reference: Scleroderma Awareness Month: Learn More about Scleroderma

Accessed at: http://www.scleroderma.org/site/PageServer?pagename=awareness_month

Accessed on: June 8, 2018

Reference: About Scleroderma

Accessed at https://sclerodermaaware.org/about-scleroderma/

Accessed on June 8, 2018

Reference Photo One: Scleroderma Logo

Accessed at http://www.scleroderma.org/site/MessageViewer?em_id=5862.0&dlv_id=0#.WxqFAtVKiM8

Accessed on June 8, 2018

Reference Photo Two: Sclero-What Graphic

Accessed at http://www.scleroderma.org

Accessed on June 8, 2018

Reference Photo Three: Sclero-Defined Infographic

Accessed at https://sclerodermaaware.org/about-scleroderma/

Accessed on June 8, 2018

Reference Photo Four: Hard Word Harder Disease Photo

Accessed at https://sclerodermaaware.org/what-we-do/

Accessed on June 8, 2018

Disclaimer: All information, content, and material of the Cardinal Institute for Health Career’s blog is for informational purposes only and are not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider.

[1] http://www.scleroderma.org/site/PageServer?pagename=awareness_month


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